What Narcolepsy Really Looks Like. Spoiler Alert- It Sucks.

Spread The Viralist



I have narcolepsy with cataplexy, and it can be very frustrating to try to explain what it’s like to people who have never seen narcolepsy in real life, and how much of a struggle it can be. Most people think that it’s funny until they see what actually happens, or they are completely unprepared and get really scared and panic.I filmed this by accident, and it was really weird to go back and watch later from an outside perspective. I am posting this video as a way to help educate people, so please no trolling. Just like people with epilepsy, I can’t control having a sleep attack or cataplexy any more than they can control having a seizure. Thank you for your understanding.

And in case you were wondering what I kept looking at, I had the choreography written out next to the camera so that I wouldn’t lose my place in the dance.

Soran Bushi Japanese Fisherman’s Dance

Music from the Bleach Soundtrack- Nothing Can Be Explained by Mike Wyzgowski. I don’t own it and claim no rights to the song.

For the next video in the series, click here:


source

Recommended For You

About the Author: Sleepy Sarah Elizabeth

43 Comments

  1. fuckk no !! oh my gooddd , i pray god heals you . this would be sooo scary for me to handle i could never live with this . your very strong to bring yourself back and fighting it ! your amazing girl

  2. Your a trooper. If I was in your situation I would give up. I love how you keep fighting and fighting. There’s wasn’t a time where you gave up in this video. This is my first time watching you and I love you already.

  3. wow, these cataplexic attacks are very different to what I am used to witnessing. my mother is narcoleptic which I strongly believe she's inherited through her fathers genes. id love to learn more about the medications you have tried as my mother was subject to different treatments due to the severity of her condition. kudos to you for putting yourself out there and educating others, I've witnessed how frustrating this illness is.

  4. May the universe bless your soul, I'm happy to see you fighting threw this seems very hard to deal with. I hope the best for you and anyone fighting similar issues??

  5. One of my friends has some heart problems and she used to faint very often. It was scary bc one time I caught her as she fainted while going up the stairs. It would have been very bad

  6. I just need to sleep all the time at the moment, random times and sometimes all day. So sleep for 8 hours, wake up and then after a few hours time to sleep again. So if I get stressed, then no sleep for me. Cataplexy looks like real fun as well, so happy to live without that one.

  7. This is awesome to see all the positive comments but I only have one question what happens if you just go lay down would you sleep all day or would it help with it happing so much i feel like it would make it hard to do daily task sleeping so much but hope you find ways to control it better but still one bad ass

  8. I was in class with a girl with narcolepsy. She was constantly feeling weak because she never really got full, restful sleep and her immune system was pretty much shot. I can’t imagine saying you want to see someone pass out because you think it would be funny to just see someone randomly fall asleep

  9. I’m sorry just by the video you can see you trying so hard to stay awake for me I have asthma and when I get stressed I have to ask to sit outside the classroom and try to clam myself down by myself cause my asthma will not let me clap down so it’s sucks and ya

  10. I feared a little for your head when you felt in sleep after the first cataplexy attack and the second sleep attack while you were sitting on ground. Did you found yourself onground sometimes and hurt after attacks? I´m really sorry for you and hope that you meanwhile found a good treatment to help you. Stay strong

  11. Omg this video had me crying I wouldn’t wish this to happen o my worse enemy I wish the best for you and for all the people who laugh y’all are going to hell and y’all should be ashamed and in dempt to y’all self only the people who thought it was funny

  12. Hate To Sound Cliche But i Appreciate Your Vulnerability, Almost As Much As i Admire Your Determination To Get Thru Your Routine. I Have Passions As Well And i Battle My Own Demons But None As Physically N Mentally Demanding As This. You Inspire Me To Make NO Excuses. You're A WHOLE Vibe Babe, Thanks For Sharing❤

Comments are closed.